My Lyme

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  • Hi my name is Peter Ardern and I have Chronic Lyme Disease (CLD) – I am the one without doggy-breath
  • I am also being treated for co-infections that are commonly associated with Lyme – Bartonella & Babesiosis
  • I have had chronically bad health for over ten years –  Chronic Pain, Thyroid issues, Fibro Myalgia, Chronic Fatigue, Liver, Lung, Joint, Heart, Vision, Motor Skills, cognitive and Mental Health issues
  • I live in Bruce County at the bottom of the Bruce Peninsula – I have lived here since 1990 after leaving the U.K.
  • I have traveled the breadth & width of this continent as well as Mexico and some Caribbean countries
  • I have spent a lot of times outdoors and I have dogs as my companions
  • I am married to Michelle who also has Chronic Lyme Disease (CLD)
  • I was diagnosed in Sept 2014, in Plattsburgh, NY by a well known Lyme Literate Doctor
  • My wife Michelle was diagnosed six months previous to me
  • We are both on a treatment protocol which consists of Anti-Biotics, Anti-Protozoans and some natural products along with a diet plan.
  • I also have a Lyme Literate Doctor in Toronto who was the one who took the time to finally determine that we needed to seek treatment in NY State.
  • I was tested and diagnosed using IGeneX Western Blot method including the 31 kDa Epitope Test which has a 98% accuracy rate. I was also clinically assessed by my LLD.
  • The Ontario ELISA test is not very reliable at all – too many false negatives.
  • IGeneX have a highly developed and proven test method that is second to none  . . . period.
  • I follow a strict Paleo Diet along with a Gluten/wheat/Diary and Alcohol free diet. No sugar and absolutely no processed foods.
  • Since starting my treatment I have improved enough to have hope for a good future.
  • I want to help others suffering from this misunderstood and under diagnosed disease – this is my reason for this blog

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Lyme Psyc 101 – being heard.

Well,  I am still here alive and kicking. Been having a tough time recently and havent had much patience or energy to blog much. Trying a new drug regime of pulsing different combos of drugs for ten days then off for three then pulsing another set of drugs for ten days. Herxing and muscle/joint pain like crazy and feeling under the weather for the most part.

To anyone reading this, I just want to say – it will be a long road to recovery for all of us and we all have to be positive no matter what stage we are at. For some of us recovery will be relative, for others it maybe a complete return to the life “normal”.

This is what I find hard to do, that is, live in the now and accept the fact that my life has changed.  On good days I find myself accepting and living this life with new doors being opened to others via our commonality of our condition (be it with Lyme or other chronic diseases). On bad days I sometimes stick my head in the proverbial sand and deny that something (life) has changed without my input of will or choice. I am sure that I am not alone in the fact that I now have a life that has taken a different path than I had hoped for and the acceptance of this can be as hard to deal with as the disease itself. Maybe the fact that all diseases are unwanted is part of the condition, isnt it? I mean the fact that nobody wants or expects to get sick in the first place is part of the burden of any illness, that is, the unfairness and anger of – “no choice”.

I am lucky to have the ability to see a Pyschologist who specializes in pain and chronic disease management. I guess this is the point of my post today – communication and sharing in times of illness. I know not all readers will have the luxury of having a doctor (shrink) to be able to speak to for help and guidance but even if you have someone to listen to you who is not a professional, it may help to hear yourself verbalize your feelings and needs (for lack of a better term) to someone other than yourself. To hear the words aloud that you tend to internalize can be uplifting, therapeutic and a very powerful learning tool. So listen carefully to your own words that you share with others, these words can sometimes surprise you when you play them back to yourself.

So with that in mind, let people know how and why you feel the way you do, rather than sticking your head in a subterranean place when feeling isolated and not understood.

Anyway signing off but not before a shout out to my wife, best friend and fellow Lymie – Michelle – thanks for being you and always listening … xox.

 

Spirochetepete out  . . . . .

 

 

Supplements – Positive thinking!

Probably the most important “supplement” of all is the power of positivity and positive thinking.  If you use it as a placebo to help healing or meditation to improve your quality of life by attracting positive results the end results are clear – a positive outlook is proven to help no matter your situation. I know I hear you moaning at yet another hippie drippie term . . . but the results of multiple studies show that positive thinking is the key to better health and general quality of life. From monks of the old world to top performers in the modern day (and all in between) the one self directed technique that costs nothing and has potentially unending good results is positive thinking and verbalization. So from my POV whats there to lose? Costs nothing with a whole lot of pay off. Give it a go. Google it (studies) if you dont believe me. I am the first person to appreciate feeling helpless and isolated from months and months of feeling unwell and being unable to live a normal life, but we all have to keep a positive outlook. Its easier said than done but it does help, trust me.

Feedback always welcomed, so put your ten cents worth in.

Again signing off and remember to Cover Up Bug Spray Body Check (CUBSBC) if you wanna stay Lyme free.

Spirochete Pete out  . . . .

Panic – A Bedtime Story

Been out today walking the dogs (after supper walk) through the nearby tree plantation. Bed time now sitting here all snug as a bug, when I feel a small round squishy object moving down my chest heading to the area just below the arm pit. My blood pressure rising at a high rate, enough to execute my “oh gheesh its a tick (algorithm) . . . Defcon 3 initiated, Pentagon called, get Air Force One ready etc, not to mention my extremely sharp and volumatic  (“feck . . .  get this thing offa me stat”!!!!) squeal, something that only Wolverines and crazy people can hear. Needless to say Michelle (wifey) came running (well I know she isn’t a Wolverine…) Did I mention I had Apple crumble/Cobbler for a snack just previous to this hostile critters attack? It (the tick) could not resist gravity and had succumbed to the inevitable and was heading south down my chest toward my lower armpit area. Well that tick with its pale green body and yellow puss like trail had met its end . . . bed side light on and  . . . . . .and…. an apple crumble and custard duo making a bee line down hill. The jellyfied blob was doing what mother nature designed it to do . . . fix my bed time snack need(s) and then frighten the bejesus out of me.

Moral of this classic . . . well its three fold 1) dont eat in bed AND 2) hit the target AND 3) not everything that creeps about at night is a Tick and most probably a piece of apple pie and custard (just like Mom used to make).

I wish I hadn’t missed my mouth, god knows its big enough!

For more award winning blogging stay tuned, I am sure I’ll get hungry again soon enough

Remember to Cover Up, Bug Spray and Body Check (C.U.B.S.B.C. every time if you wanna beat Lyme)

Spirochete Pete out  .  .  .   .

Liver Detox

Got that sluggish feeling? Eyes not as bright as they used to be? Skin looking dull, Brain fog? Nausea becoming a little persistent in its attempts at side-lining you with that awful feeling?Low Energy levels and fatigue keeping you from putting one foot in front of the other? Well if you are doing as I am and trying to kill the Lyme invaders and its cohorts it is inevitable that toxin levels will rise from die-off and eventually end up in your Liver and could be the reason why your Liver ALT levels increase, the Liver is getting over-loaded with waste that can become toxic. Maybe your are just wanting to remove everyday garbage from your system, or just a heavy weekend drinking with the guys, but no matter why you need it, you can safely detox by using my methods and others that are out there. Just remember all “detoxes” are not made equal. My type of detox is pretty safe as compared to some extreme liver/colon cleanse. Just remember that you need to check with your Dr and see if they have a reason for or against doing it. Ok read on . . .

Firstly we have to encourage cellular detox and to start things rolling try a good old fashioned Epsom salts bath, this in itself is a very effective method of not only helping a tired achy body but it really helps your body to start flushing cellular waste by absorbing the magnesium sulfate which in turns manages to encourage waste products to be flushed out during the process – just Google Epsom salt detox baths and you will find lots of good information. Drinking PLENTY of water during and after a detox bath is very necessary so drink drink drink till your bladder thinks its working overtime. If you have read my previous posts on supplements I mentioned Glutathione- a very powerful anti-oxidant and Liver detox aid – see this article http://www.huffingtonpost.com/dr-mark-hyman/glutathione-the-mother-of_b_530494.html  – and this is why I use it once a day. Milk Thistle helps the Liver and boost Glutathione levels (we actually make Glutathione internally but not enough in this case). NAC (N-acetylcysteine) helps the body make – you guessed it  . . Glutathione. I also use digestive aids, such a liver Bile salts and others especially when I feel my Gallbladder start to grumble as mine does from the Lyme disease being firmly entrenched in there – yes Gallbladder is a really good place for the Lyme Disease to hide and we find it equally hard to get our medications in there to kick some Lyme ass.

So that’s just a taster of the Detox world (safe detox) and there are thousands of blogs, websites and forums to help you on your way. Just remember to be safe and have a plan and stick to it. I do not profess to be qualified to give specific advice but I follow my regime and so far so good,

So that’s my Sunday evening preachings to the interested, I think  . . . . but I am not sure if anyone even know the existence of this site???????

Spirochete Pete signing off for now . . . cheers and here’s to Spring – but remember its Tick season, cover,spray and check after being outside.

Lyme and the Stars

Just recently more news of “famous people” being affected by Lyme has become a mainstream topic. From Ex U.S Presidents to singers and all in between have been infected with this disease.

Here are a few “famous” types confirmed to have Lyme Disease –  Alec Baldwin, Avril Levine, George W Bush, Parker Posey, Daryl Hall and most recently Yolanda Foster – to name a handful.

So no amount of money or status can protect you from Lyme and other Tick born disease as the above list of people confirms, so with that in mind always be aware of the fact that anyone of us, can (and do) contract Lyme.

Protect yourself accordingly when you are out in potential Tick habitat(s). Long sleeves and pant legs, bug spray and body checks once you are back inside can all go into keeping you safe. Unfortunately the “stars” also have to contend with the nastiest of all parasite – Paparazzi, I thankfully do not!

Thanks for reading my Sunday morning musings. Remember stay tick free and healthy

Spirochete Pete signing off . . . .

Activated Charcoal

Activate charcoal is one under used and very helpful supplement helping detox from every day life to more serious issues after treatments like die off when treating disease with heavy uses of anti biotics, anti-viral and anti-protozoans. I use it every day to help my body expel all those toxins that my body needs to remove. An absolute must to use when you are serious about detoxing for whatever reason. Visit your local Health Food mart soon and pick up a bottle of this wonder stuff. I would rate this product in my top three whilst I am dealing with my Lyme Disease. Dont forget it is great for suspected poisoning, snake/insect bite. OD’s and trying to bring down the little ones if they are acting up after eating junk food.

Wobenzym and Low Dose Naltrexone (LDN) for Pain Management and Immune System Health

Wobenzyme – This little gem is amazing for pain control as well as being a digestive enzyme and has been revolutionary in pain management in Europe for years. I use the Wobenzyme P on an empty stomach and it has really helped to keep my chronic pain manageable, not really a complete pain eliminator but when  used in conjunction with Low Dose Naltrexone (LDN) my overall pain has decreased to a level where I can now reduce the amount of the heavy hitting pharmaceuticals to a bare minimum. I am not an expert on how Wobenzyme works but I do know if you take on an empty stomach it seems to go to the source of your pain and take the anger out of the joint or joints. German ingenuity at its best so check it out at www.wobenzym.com.

Low Dose Naltrexone (LDN)  –

I take 3mgs of Naltrexone at bedtime. It again helps with chronic pain management. It was approved by the FDA in 1984 in a 50mg dose for helping heroin or opium addicts, by blocking the effects of the opioides. By blocking opioid receptors, naltrexone also blocks the reception of the opioid hormones that our brain and adrenal glands produce: beta-endorphin and metenkephalin. Many body tissues have receptors for these endorphins and enkephalins, including virtually every cell of the body’s immune system. By blocking these receptors the brain is tricked into producing more of these endorphins which once the effects of the LDN wear off them our brain and body gets a double whammy of feel good hormones to help us with deal with pain and illness.

In 1985,  a physician with a clinical practice in New York City, discovered the effects of a much smaller dose of naltrexone (approximately 3mg once a day) on the body’s immune system. He found that this low dose, taken at bedtime, was able to enhance a patient’s response to infection by HIV, the virus that causes AIDS. [Note: Subsequently, the optimal adult dosage of LDN has been found to be 4.5mg.]

In the mid-1990’s, Dr. Bihari found that patients in his practice with cancer (such as lymphoma or pancreatic cancer) could benefit, in some cases dramatically, from LDN. In addition, people who had an autoimmune disease (such as lupus) often showed prompt control of disease activity while taking LDN. Recently Lyme disease patients are using LDN for pain management as well as Immune System fortification.

Naltrexone itself was approved by the FDA in 1984 in a 50mg dose for the purpose of helping heroin or opium addicts, by blocking the effect of such drugs. By blocking opioid receptors, naltrexone also blocks the reception of the opioid hormones that our brain and adrenal glands produce: beta-endorphin and metenkephalin. Many body tissues have receptors for these endorphins and enkephalins, including virtually every cell of the body’s immune system.

 

http://www.lowdosenaltrexone.org/index.htm